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SAVE THE UNICORNS
HELP US FIND A CURE FOR SANFILIPPO SYNDROME
A unicorn is a rare, mythical, and legendary animal. A symbol of purity and innocence. Children with Sanfilippo syndrome are unicorns. They are magical and transcendent.
We must save the unicorns.
WHAT WE DO
We are one of many families that support the Cure Sanfilippo Foundation (CureSFF), a non-profit that funds critical research for a treatment and a cure for Sanfilippo syndrome, for which there are currently none. We hold a 5K & 1 mile walk/run each December. We also sell Do it for Declan merchandise on our site. All proceeds go directly to CureSFF. We are advocates for Declan and do what we can to spread awareness about the disease. We fight for our child and all children with Sanfilippo syndrome, for treatments, and for a cure. Please help us Do it for Declan.
ABOUT DECLAN
Declan is 9 years old, has dimples and the most wonderful laugh. His giggle can make anyone smile. He has thick blond hair, blue eyes, and loves anything that involves a ball. His favorite shows include Bubble Guppies, PJ Masks, and Mickey Mouse Funhouse. He loves his snacks and is constantly on the move. When he was younger, he loved to play baseball and soccer. He was very good at solving puzzles and colored with enthusiasm. Sanfilippo has taken alot from him already. He has lost all articulation and many of his interests and abilities have declined. But he is resilient, a fighter, and has an amazing spirit. He will hold your hand and happily take an afternoon stroll. He loves his two dogs and little brother. He is special in so many ways and getting to know him is a gift. Declan was diagnosed with Sanfilippo syndrome, type B (MPSIIIB), in April 2018 when he was just 4 years old.
About Me.
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